When our twin daughters were born
on July 7, 1981, we immediately knew one of our precious babies was in
distress. As a mother of an already two and a half year old daughter, it was
plain to see the tiny twin was nowhere near her sister's capabilities, but the
day we found out why was a heart wrenching experience. The truth was finally
confirmed, at seven months of age, the smallest of the twin girls, Shawna, was
diagnosed with Cerebral Palsy; however the extent of the physical and/or mental
disabilities were still unknown.
As the months went by, we became
very involved in infant therapy and we believed that the sky was the
limit. Our primary goal was to help our
daughter become an independent little gal.
I remember so clearly, how Shawna struggled with great perseverance
until she finally learned to pick up a teething biscuit and get it to her
mouth. It soon became second nature to
her. With instructions from a
physiotherapist, her Grandpa built her a corner chair, which allowed her to sit
securely with a tray in front of her.
There often was a lapse of many
months before she accomplished another great task but each was as special as
the first. The day Shawna sat alone for the very first time at two years old;
she brought another occasion for all of us to rejoice with tears of joy and
celebration.
My days were often a blur with
three small girls that needed attention but would have liked a bit more cuddle
time. There was little time for sitting and
rocking; there were daily exercises to do along with a multitude of other
household chores. Shawna quickly learned
that she had to keep up to the rest of the family and there was no special
treatment, so to speak. We were going to make her function as normally as we
could.
That was the plan. At the age of two Shawna would take a
forty-five minute handi-bus ride to preschool at the Alberta Children's
Hospital, for five days a week. As she grew, there were many accomplishments
that remain clear in our minds including standing alone and taking a step at
age eight, reading a Sweet Valley High book at age ten, and telling her older
sister what it was all about. These were the moments that confirmed to us that we
were blessed with a child who was physically disabled but more than capable of
comprehending all she heard and read.
Shawna played out on the street in
her special walker along with her sisters and the neighbourhood kids, except she
was clad with a helmet and wore braces on her legs. She went skating with the assistance
of the same walker and then learned to swim with a neck ring and a life
jacket. Shawna attended Brownies and
Girl Guides for several years and would tell everyone that she walked to school with the help of her
electric wheel chair, which she had from the age of four. Our daughter quickly learned all of the short
cuts to take to and from school.
From a very young age, the word
"no" was not in Shawna’s vocabulary and we wouldn't stop her from
living the life she wanted. Believe me, there were times I had to turn my back
and fight back the tears as I watched her determination to master and conquer a
simple task that we take for granted every day.
Some of these tasks included making several attempts to get her hand to
pick up her Barbie Doll, put it in the front of her tee shirt, and then hold
the tee shirt with her teeth and crawl to play with her siblings. Going up and
down stairs on her bum, backing up to a chair and then raising herself up to
sit down on it.
She went from grade one to twelve in a modified program especially designed for her, and moved out at eighteen years old, even before her two siblings had thought about it. Attending various programs and conferences all over the city, relying on handi-bus services to drop her off and hopefully remember to pick her up again. Travelling to Mexico, with the assistance of a caregiver, was a highlight of her life, as well as being her sister's bridesmaid.
She went from grade one to twelve in a modified program especially designed for her, and moved out at eighteen years old, even before her two siblings had thought about it. Attending various programs and conferences all over the city, relying on handi-bus services to drop her off and hopefully remember to pick her up again. Travelling to Mexico, with the assistance of a caregiver, was a highlight of her life, as well as being her sister's bridesmaid.
None of these accomplishments came
without my tears which were quickly concealed so that Shawna would not see how
it tore at my heart; however, I knew deep inside this would make her entirely
determined, self-motivated, and the independent young lady we are so proud of
today.
Shawna has taught us to be
patient, to never give up, and that if you want to do something bad enough;
there is a way to accomplish it. She has brought us so much joy with her great
sense of humour and reminds us to keep things in perspective and be thankful
for everything we have been blessed with. She has truly been an inspiration to
her two sisters over the years.
Through all this, it did not come
without a price for her twin sister, who carried guilt from a very young age.
She also struggled to see her sister beyond the disability. The rest of us were
fortunate enough to accept Shawna as a whole person and then see her limitations.
We are grateful today that with counselling from a very special person and lots
of reading, her twin now has a relationship with Shawna that strengthens
day-by-day.
No comments:
Post a Comment